Sunday, June 27, 2010


For the most part, T's feeling back to herself. She has learned how to swallow and take small bites of food even with the stent in place. But, we have started the countdown for the next surgery which is Tuesday the 29th.

After the last surgery, we have to deal with major drool, increased secretions, and major gagging and vomiting episodes. I believe that is what we are to expect this time as well. Once again, she will have another gnarly incision on her neck to add to the two new ones as of the 14th. They will have to make an incision once again to release the sutures attached to the stent. Once released they will remove the stent through her mouth and do some dilation and web removal(scar removal) depending on what they see. It should take about 2-3 hrs and then on to recovery we go. She will be admitted to the hospital for a few days to (again) have to learn how to swallow again and eat all over. This cycle will continue for the long haul.

Speaking of the long haul and after much deliberation, Adam and Lauryn decided to be the ones to head back home. As a Mother, it is so hard to have to pick and choose where and when I will spending my time and with who. But, I couldn't imagine not being here for the next two surgeries and recoverieswith T. It is not easy to be away from my Lauryn and Daddy, but this is what was going to work best. we have decided that Adam will be the one to bring her back for the next couple of surgeries so I can concentrate on getting into the groove at work.


  1. What an incredibly hard decision you have had to make. I'm sure your heart is pulled in two places right now. We'll be praying for you and Miss T on Tuesday. Good luck!!!

  2. You are an amazing family the way you tackle each problem. You will be in my prayers these next weeks.
    Noah's Nana